Thank God for her language

Each time Prisha is on her own and in situation which can be unnerving for us parents , I feel so happy she has language to depend on and has acquired it and solves her problems. Today on the way home she went to buy the ticket on the automat for the tram and it wasn't working! She called me and I asked her to press buttons again. It didn't work, puzzled that she was. While I started to rattle that she should ask for help... She was already at it! She asked a lady who explained that she should take the picture on her phone of the automat and keep. If the ticket checker comes to check her ticket , she should show the picture and tell him that the automat is not in function. Then she won't be fined. She made me also speak with the lady to confirm and we were so happy that I didn't have to rush to school to pick her up which would have been quite a job!! So proud and happy that she has language and these small situations are making her gain confidence in herself and making her independent! This would have been so hard with signs and lip reading ! Thankful for the spoken language and alaka ma'am! 

Inspiration to dance

When you have speech and language nothing is impossible. Hard work is what gives you success. Prisha has made a sister here in Diya and she finds her so pretty and talented. Diya plays a piano and does an Indian dance form bharatnatyam and is now inspired to learn it. Will she ? Will we get a chance? Future will tell us. I am very happy that she is inspired by Diya and had a chance yesterday to meet a few very talented artists who came to Germany to perform. Down to earth and fun people who inspired and encouraged the youngsters! I hope Prisha finds an opportunity and such inspiring people. Diya is great inspiration for her and hope they always remains connected!

Return of a big girl

As I wait for her to return from her trip,I sit with my coffee and a snack thinking about the last 3 days as teacher of ESL classes and the letter I received from the school for the presentation on deafness. How one thing in my life has changed everything in my life and made it more meaningful! I may not have a career which brings me money but I have a satisfaction that most would die for! I am thankful for what I have got from my two angels ...ma'am and Prisha !

Another hour and she would be here... How would she have changed in these 3 days? As a mum to her ... Life has been different , defying and challenging on every level of my being.... Physical, emotional , mental ! How to do things that are right for her, how is it that I can make life easier for her in the long run coz trust me life is HARD! What lessons can I teach now so that she can deal with life better? These and more always work on me. Most days I take decisions about her without asking anyone trusting my feeling as a mum. I don't want to paint a rosy picture for her coz life isn't a bed of roses, after I am gone , she has to deal with it. Empowering her such that she can live life big. I wait for that bus to return now... It took my little girl as I watched from my ESL  classroom and shall return with a grown up young lady who dealt with issues by herself, took decisions herself, no calls to mum ,no help from mum... Just she and her friends! Can't wait to hear her stories!

The first independent flight out of our nest

As my little girl readies herself to go off on a 3 day class trip to see castle and study medieval history , one more person has to ready herself to be alone by herself after 19 years in a home. After the children arrived there was never a peaceful and dull moment and I wished that soon I should have them out into their lives. These 3 days would be kind of testing moments. My Prisha who never stayed away from me shall be with her group of teachers and friends with no phone on herself, no news is good news. All my support and confidence shall hopefully bear fruits, all that I did to get her to be independent depends on this trip. As a mother of a child with hearing impairment it's a moment not easy to live. What if her batteries are over, what if she misses instructions , what if she can't hear, what if .......Unsteady feelings of confidence and weakness , faster heartbeats and lots of mixed emotions inside of me. I have been able to build enough support in teachers through my work at school ... Yet .... !!!! I am a mum of a very special kid who lives in my soul and have been one who put every single letter in her vocabulary. Today she is going to be on her own and will bring back lots of words and sentences which I shall cherish! Praying and wishing to almighty to take care of her. We both are overwhelmed but I have to keep a tough heart and show an unaffected face as always . Tonight is going to be a long night as will be the next two. Heart beat .... Please stay steady.... One beat is going away to get independent !

First tram ride

My star ! Big girl now.

 27th May 2015 will be one of our very special days in this journey. The fear with a child who has needs are too many. We always felt very insecure about leaving her anywhere alone. My husband often feared during travel in trams etc. I wanted to empower her and allow her to make it her personal journey and achievement.

Its easy peasy

So, we are soon moving from Germany and so many new changes are happening. I have so much I can pen down but unable to as time is short. But this needed an immediate post and so here it goes. We sold our car and are now depending on friends to taking us around. They are kind they don't allow us public transport. But yday was a day we had to try doing it. Normally it was decided I shall accompany her from the school just as I have been doing last 7 years or so. But yday was so caught up , I couldn't go to pick her up. So the previous night I instructed her about the journey back home. Explained how she had to go to the touchscreen of the automat , look for the British flag to change instructions to English and then follow to buy the ticket. She was nervous and so was I. The next day she attended school and at the end of the day she called me. She said "I reached the tram station. Now I touch the screen. Entered single ticket to our place , then one child and then there comes the money part. Put the money in and there comes the ticket with the 5 cents back ! " I was dumbfounded as I didn't expect it to go this smoothly. She then waited for the tram.

I called her in few mins and she was on it and we kept talking where she told me where she had reached. Soon she said mum next is our station. I suddenly realized I was on the wrong side of the station!!! In my excitement and nervousness I was waiting on the wrong side. I ran like crazy to cross to the other side as I had told her I would take a video of her coming in. Somehow made it in time. I was ready for my little star to walk into my hug. My excitement was nothing short of the kind you see in fans of big stars. The tram slid in and I saw her peeping out from behind the closed doors. She soon rushed into my waiting arms. So proud of her ! My star and princess who makes me believe that I am doing the right thing as a mum. Her support and belief in me and mine in her gives me so much strength.

Feel her confidence

This step has given us a lot of strength and also gave her a lot of confidence. She seems pretty sure about being able to do it. She did this again next day and today we decided she would help me too to buy. She and I travelled together and felt so happy together.

This does not mean that we should be doing the same. every person's situation is different and I knew it was  safe enough to take the risk here. I knew what mistakes she ould make and how I could rectify them. She was on call with me and had followed all the instructions well. She did not take risks either and trusted me and my instructions. In Germany I could take the risk of her getting off on a wrong station as its safe. I would not take the chance in all countries and places. What works for one doesn't work for all. One should take calculated risks and nothing that should endanger the child's safety and security.

I am so proud of her and this is another small feather in our cap. It might not mean anything to many people but to us......its one more very proud moment.

Latest on FB

This what's happening on Facebook, lots of updates on trails of Sky Q from Phonak and also the tricks we worked in helping us tune the aids better.

https://www.facebook.com/pages/Impaired-but-Empowered/264962493565917

Made some music

        Today Prisha had her music inference. Here they showed us what they did in music. Her music teacher is a very kind and friendly lady and really has helped Prisha feel a part of music class. They did a cup song and then a story which had music incorporated in it. It was heart warming to see her perform confidently. Then she sat with a xylophone and she and I had to compose music.
         I have been on stage and have enjoyed singing Indian music. But never learnt how to write it. It was so good when Prisha explained and then we wrote some notes and beats. Then we heard what it sounded like. To one she said she didn't like and screwed up her nose. And then she and I agreed on the new change and we heard our little piece and loved it. It felt so good to see her confidence. I hope she continues enjoying music this way.
       She has even made a song for her brother , a very emotional piece which she sings when her bro leaves to go to his home in Holland. The words and tune set by her. I am blessed to have her in my life.
       On another note, she came to me tonight. She hates getting her ears cleaned. The wax pulled out hurts her ears. This time we are putting oil to help the wax swell and then we shall get it washed out.She says a few things that make me cringe. She said sadly , " I wish mum I had no issues with my ears. I hate wearing aids, wish I didn't have to work so hard and wish I was like other normal kids. Was I born dead? When did u know I couldn't hear? How did you know? Oh mum I wish I was normal! Wish my ears could be repaired and I could hear without aids !! " How do you deal with this? You just cringe inside and wish God could hear this cry and repair her ears. Wish she didn't have to deal with so much. Wish kids could understand her fight with issues they take for granted in class. Wish they were kinder and supportive. Wish sometimes life was easier for her.Wish she grows up really fast and can feel she is happy and cheerful and she is complete and doesn't need to be sad. Her parents and family are so proud of her and will support her every way possible. 

Singing in choir

Nigerian song

Who says she can't sing? If you get the right guidance,believe in yourself and push hard enough one can do it. So proud to see her stand up with other kids on stage to sing. Choir group at her school had many kids and she chose to enrol by herself in it, went for practice at school, asked for written lyrics so she could learn the words and at home would close her room and sing at the top of her voice ! She believes she is a good singer and so do I ! She won my heart and left me in awe of her determination. 3 songs , she learnt them all. ♥ If she can do it.....anyone can.

Fear turns to empathy

     Prisha with her hearing issues deals with many other issues. Being understood, being accepted by people, at times limited understanding of few things, friendship issues are just a few of them. Yet we keep working tirelessly and make sure her morale is high up and she works hard to be up there. Her spirit to learn and accept her shortcomings and her disability is commendable. Being her parent I understand her pain and at times when she has to deal with friendships it can be very hard. The need to be accepted as she is , to be called as a friend and made to feel wanted is always a wonderful feeling and makes her day. The new school has a very positive atmosphere where kids are more easy going and accept her much better. After a long time she has stopped crying and being sad for friends and also is happier and calmer at school. She has her group , mostly Indian, and she loves being with them.I am a satisfied and happy mum.
    She often mentioned "L" to me and said she always hung around her group or played with her. I was glad that she had a good time at school with her. Then we met at Kumon and she begged me to let Prisha go with her home for a playdate. She was pretty hyper.It was already late and so I wasn't too sure. Before I could react her mum came in and the reactions made me feel as if she wasn't really wanting her to have one. We came back home.
    Yday we met at Kumon again and she was with her sister. She again begged me to let her go, I finally gave in. Her older sister offered to take them home walking as they loved walking. Her sis said she would be careful with Prisha on her roads and L said ..." my sis has been taking care of me for very long and she walks me home many times". Convinced I allowed her and drove back home.
     Later in the evening my hubby went down to pick Prisha from her home and she lived just round the corner, we were quite happy as this would give Prisha a chance to have a few playdates close by. My family returned and I see L rushing down too and ringing our door bell many times. I was a bit hassled and rushed to open. She came in and blurted a few things including a sleepover at her place and my hubby somehow dropped her back home. My hubby and I felt everything wasn't of with her. I found her too hyper and I was suddenly uncomfortable with the idea of having her this close to her place. She was comfortable coming on her own and that means we may see this very active girl too often.
     Today once we got home from school, an hour later I see L coming down the stairs in front of the house. I froze for a minute and then allowed her in. I made it clear that we don't do a sleep over yet , I have to know her better before we have one at our place. Prisha isn't allowed unless the family is really very close. She has had only one stay over till now.
    Soon she was all over the place , took Prisha to a nearby park, came back and started to paint. By now I was really wondering if I want her around and was a bit skeptical about her skills with handling the colors and water. We made it "paint friendly" and they both started to paint. Soon we saw her writing in paint a letter to her teacher. I got back to cooking and suddenly heard my hubby call me. He said L is dyslexic and has ADHD. My heart melted and my face was washed out. I sat next to her, a very warm and tender feelings inside me now. I asked her hesitantly and out she came with all confidence telling me about it. What she said made me melt. She said she had ADHD and was dyslexic and explained the problems associated with it. These were new to me. She had language issues and spelling problems, blurted out stuff which could offend people but she never meant to do so, could be very hyper and had learning support at school. She had friendship issues as no one wanted to be friends with her. This bit really hurt me and I could understand her pain which she said very matter of factly and with immense confidence. My feelings changed and my fear, anxiety, "anti-her" feelings disappeared and I decided I am going to be patient with her and help her feel differently. Could understand what she must be feeling coz Prisha goes through it always. I also got to know the letter was for her class teacher as she was her pen pal! That explained the writing bit on her card. The teacher had a unique way of helping ehr with her vocabulary and writing skills. I had a huge sense of respect for her teacher!
      Soon I saw another side of her, she was caring in her ways, Prisha didn't hear but she did and so got the reading glasses for my hubby, tiptoed out of the room as my hubby did his evening prayers and excused herself for disturbing. I stopped her for dinner and she ate our Indian dish with loads of yogurt and sugar. She wasn't keen to go and was full of energy, but I decided it was too late to stay out. My hubby dropped her back despite her insisting on going back alone. Turned out her dad was looking for her, wonder if she did tell tell her dad that she was coming over to our place.
      Thinking since then, how the special kids need to accept their shortcomings in life. Today I felt happy trying to make her feel cared for. For me it was a revelation of sorts. Now hopefully we shall plan days and have her come over.I am glad I have not lost my humane touch and could treat her with due love and attention. We are now preparing for her impromptu dropping in for play dates or Prisha being called more often. How to deal with it we shall see. A certain discipline has to maintained and a balance being maintained. 

Empathy and sensitivity towards the hearing impaired

General thinking about deafness is that ....oh she can't hear but can speak and that's ok. No one knows what went in for her to speak coz you don't hear you don't speak.....period. I was lucky we forced her to hear , understand and speak. And that takes efforts even now as she has to strain more than others , has to work harder than many students put together to get a few things done. Hard work, pressure, stress, frustration, heart burn, scorn, push are a few words she saw very early in life as against many things most normal kids take for granted. Not being accepted easily by people around, not being kind and not being cordial and patient.....she understands it all when the others show these behaviours. Next time when you see someone trying to say a few sentences and is putting all their being together to get it right, just have respect and be patient coz you don't know how much guts and courage one needs to be in those shoes. Imagine if the roles were reversed and you were there struggling.....the action that follows would be easy and a sense of fulfillment would prevail.