Phone made from razor packaging |
Since I was feeling a bit claustrophobic being at home all day on the sofa, we decided to go out for a drive and see a bit more of the country side in the area we live.As we set out, I was enjoying the nice cool breeze, a bit cloudy sky,( I love it as India is mostly sunny except the monsoons 2-3 months a year), the empty roads on a sunday evening and the drive, I heard Prisha at the back pick up her play phone made from another waste packaging. She started to keep chatting while my husband and I kept our conversation going ,when suddenly her conversation caught me and we stopped talking. She was talking to her friend named "Simiya" ,a name she invented on her own and was busy taking about her.She asked about her baby and her husband and was making such a REAL conversation that we were out of our wits. I really wished I had my handycam.Then she realised we stopped talking and she said," mumma, I am talking to my friend Simiya, her husband's name is Sigga and the baby's name is Saphiya". I was amazed at her new names that she had invented.We ignored her as we wanted to hear more of it, while we giggled behind our seats.She then called up another friend and said,"Hi, how are you, Ooooo, you are getting married, wow, then you will get a baby!!"and she went on.My God!! We were holding our tummy and laughing at her real conversation.Then after a bit more of chatting, she fixed a date with her friend to meet her at home as it was her birthday party in the evening.She is not too fond of going out for a drive, I have realized and is mostly then busy with her role plays and her phones or she sleeps off. Then started her rants of wanting to go home as she had to dress up to go to the birthday party. When I said we were far from home, she said,"I am sleeping and you wake me up when we reach home and remind me I have to talk to Simiya as we are late for the party" .We settled on this note and she dozed off.The moment I reached home and I woke her up, she said "Oh yes, I have to talk to Simiya". I was so amazed at the whole chain of event.She was conversing like us, introducing the way I was introducing my family to them and making up her own situations and conversations around family, friend and baby sleeping and wedding etc.
I thought about it later and realized the importance of her being so auditorily trained. She was so tuned to sounds around her with all kinds of background sounds included, as in India there is plenty of noise in the city, that she is used to picking up voices over noises involuntarily. I thought that while I chat away on phone etc, she may be ignoring the sounds as it is natural for the hearing impaired to ignore sounds and talks around them.A lot of such people are used to talking only when spoken too and in the process miss out on what is happening around them.They miss the talks between other friends, or people talking together as they find it hard to concentrate on others' conversation.But since she is auditorily trained, she pays attention to sounds.As the sounds fall on her ears while she does her things, her brain is retaining the happenings around her and she reproduces similar things later.As the sounds fall on her ears, she keeps herself abreast to things happening around.I am so glad as this brings her closer to normalcy and we feel happy that with great speech therapy , we are able to lead quite a normal lives ourselves.Many people tell me this that she is so normal with her interaction that they feel she is not hearing impaired.I thank God and my loving speech therapist Alaka Hudlikar, who has made this so possible.And now this is so close to my heart, that anyone who is in a situation like this, I am all out to help them out.
She is so creative! I love her thoughts! She comes up with very interesting and original names for her pretend playmates- I love it when kids are creative!
ReplyDeleteParents do need a lot of guidance in the early days of diagnosis. I feel like we are going through it all over again with the new hearing test data we received at John Tracy. The internet and being able to talk on the phone to other parents is invaluable!
Early intervention is very important for kids with hearing loss.
ReplyDeleteParents need correct guidance on this hearing path. For you its Alka teacher. But it is also your hard work that Prisha is talking like this.
You are also doing a noble job of guiding other parents by running this blog & video uploads.
John Tracy Clinic (JTC) has helped us with Meera's hearing journey. JTC audiologists & demo-home teacher are like life line for us. They have a picnic at Long Beach this Saturday. I am really looking forward to see other parents & grown up kids with CI and hearing aid.
I feel your years of hard work has made Prisha now independent. Prisha has crossed over the critical stage and you have helped her open up the path to reach her full potential! I am really happy for you.
Mayuri
Thanks Mayuri for your comment.Yes, had it not been for Alaka Teacher our life would have been quite miserable.I think hard work is very essential along with early diagnosis.I am very happy to hear that you are taking advise from JTC.We would love to know more about how you apply, what kind of help you get there,how do you visit this and what can parents like us expect from them .Prisha is integrated and I would really love to help her out with more.How is Meera doing? How old is she and what are you doing with her?It would be good to get more information from you.All the best.
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