Sunday, August 17, 2008


Yesterday we went to our audiologist to get an audiogram .Prisha had a cold but we wanted to do it as it had been over a year since we did it.In India we decide when we do things.Nobody sets guidelines and so if parents are not aware themselves and do not question things , the child looses the most.Prisha performed very well and she did all the sound tests very well much to the amazement of the people around.Well I work hard with her....The audiologist decided to then check and reset if required the setting of her hearing aids.We also got the impedence test as she was not responing to some sounds which she did earlier.It was found that due to her cold the right eardrum was retracted.So she needed medication and then we would test again.We discussed other problems that I found in certain sounds and told her my observation.The audiologist changed a few setting to understand if it suited her better.I told her not to change the settings and would do so after the 2nd round of tests.I was disturbed about her eardrum and was concerned as she has been slurring and I need to keep pulling her up.This morning I noticed that she was mumbling, mixing up words, misinterpritting sounds, not hearing her name well, not responding from other room etc.I was so disturbed and broke into cold sweat.We kept trying out all techniques and I lost my cool and really thought that her hearing has got affected due to cold.I even thought that her loss has increased as her eardrum has got affected.It was a nightmare of sorts that I was going though.Then a ceratin brainwave occured to me.I increased the volume of the aids and lo....her eyes lit up!She shouted..."mumma I hear!"i was aghast!She responded to everything and repeated everything.I was suspecting earlier too that maybe the audiologist has changed her setting but since she had told me she wasn't ,I was imagining everything else.We called up our audiologist and informed and asked her if she did change the settings.To which she said yes as she thought it would not make a differance.My GOD, I was so full of mixed feelings, relaxed[as her hearing was not deriorating], bugged [as she changed the settings inspite of mt telling her no, happy[ as my reading of prisha's reaction to my queries to her was correct] and angry [as I need to now be more aware my self when I go to her otherwise my lil girl looses due to someone else's carelessness].The audiologist was surprised at her speech.But why?Isn't good hearing aid, correct setting, good speech therapy after early intevention supposed to give every hearing impaired child language understanding, a good voice and correct speech?In India the situation is such.Not everbody is lucky.Thanks to Mrs.Hudlikar I have become very aware and a hands on mom.She has trained me well and I am able to read my child like the back of my hand.I realise I cannot depend on anyone but myself and my child.I hope to be more on my guard.It was a good lesson learned .One more experience added to my book of journey of hearing impairment.

This experience has proven one thing that awareness is the key and some norms need to be put in place to the customers rights (read hearing impaired person) to get complete transparency of data from the audiologist like programmes, informtion etc. about each change. I only know how I have managed this herculean task of giving speech to my daughter. Thanks of course to God and Mrs. Hudlikar that we can differentiate between the good, average and the bad speech therapist, audiologist etc.

One final word of caution to parents of hearing impaired children - Educate yourself in all that has`to do with speech, audiograms, Bera tests, Auditory-Verbal therapy. Friends, it is a continuous process and you can never know enough. God Bless Mrs. Hudlikar.

1 comment:

  1. That is very good advice for parents of deaf children, no matter where they live! It is fantastic that you are willing to fight to get the best for your daughter. I hope that someday all parents in India have the same opportunities.