Saturday, August 23, 2008

Testing times

Well my brush with difficult time after the audiogram was not over.After we got the settings readjusted [I did give her a bit of a dig for not telling me she had changed the settings-as I depend on her I need to just do it diplomatically.I can't go head on as there is not much option around.I would have to go to Mumbai then which is 5 hours of travel one way.] Prisha and I got on talking all the time to see if new settings are better.After school the next day she told me she had a problem hearing in the school.I was nervous and contacted the audiologist.She played on our emotions and told me not to worry my husband who lives in Austria but she would help me when I needed.She knew we were nervous and told us that as her audiogram was very bad, and the new settings were also not alright, she must have developed more hearing loss due to the cold for a month and the retracted eardrum.You can imagine it was like a ton of bricks that fell on me!!I cried so much, could not eat and drink and went through the same trauma as when we discovered Prisha was hearing husband in Austria too was constantly on the phone trying to console me calling up people and the audiologist as to what to do next.She told him that she would try new set of higher power hearing aids!God damn it I just bought a new set of aids last year after we found that she prescribed the wrong aids the 1st time!!How can I keep purchasing aids worth 1 lakh rupees every year!I took control and then decided to talk to a few people whose kids went through the same things.They told me that there condition was worse than Prisha's and nothing happened to them.One lady told me that every year for the last 4 years the audiologist has been telling her to change her daughter's aids for the same reason as her daughter suffers 3 months of cold due to a particular season and yet nothing has happened.She really talked to me and a sort of peace came on to me.
I had the appointment this morning with the audiologist and I decided to cancel it and 1st talk and clear out the aspect of hearing loss due to cold with a friend ENT specialist.When i told the audiologist about my decision she said that I must show the bad audiograms and tell him that she was saying that Prisha had suffered more hearing loss due to cold.She even volunteered to talk.I told her that I was going to a friend ENT and that I did not want Prisha's setting to be changed so often as it takes Prisha too 2-3 days to really get used to those settings and that I would decide only after her total cure of cold and after advise from my ENT, she was a bit eh...I could get a message.
I broke down in front of my ENT specialist and he told me she was a bit commercial and erased the myth that a cold could affect sensori neural loss.He explained how due to the cold , the middle ear is wet and the constant sniffing retracts the eardrum.You treat the cold, and within a few days the middle ear dries up and the child gets her hearing back as the eardrum comes back to its position.I WAS SO RELIEVED!He also checked her ears and said there was so much wax in her ears and so b'coz of the cold and the wax the audiogram was bad.In fact before the audiogram her ears were checked.Did she not see the wax?Or was I in an ideal situation for her monetary benefit?
Now we are treating her cold, will get her ears cleaned, after 2 weeks get another audiogram from 2 places and then get her settings.God , how much stress a person in India has to go through as there are people who think for just themselves.We are educated and so we run around , do research and then take decisions.What about lakhs of those people who are not that aware, educated or not in a position to do so?Is there an end of the tunnel for people who are helpless and unfortunate or will they be the soft targets those who are supposed to be experts ?There is a vicious circle.As the numbers are too large, no awareness, few experts in high positions,no support from anywhere, these people make their money at the cost of someone else's misfortune.I wish I had the money to open a centre where people could get the right advice and correct direction and close these money making practices.I hope I am able to at least reach out to someone who may have gone through this.Ask questions, do research, do not accept any advise which you find suspicious.Educate yourself about the problem is the only way to wriggle out of the clutches of the wrong.

1 comment:

  1. Dear Ruchi,
    You are indeed are very brave woman and a woman of substance. The best test for any study, experience or logic is the result. From what I read about your daughter from the blog, is that your daughter is speaking, going to a normal school etc. Hence this is the best reslut and that is all that matters. Do not believe anyone other than your own experienece and the experience of similar parents.'Keep walking my dear- keep walking' and success will come- have FAITH and trust your own hard work.