Monday, May 24, 2010

A marathi article in newspaper

Today I managed 2 posts.The previous being feelings for my teacher from my heart.Here there are feelings from another parents of a deaf boy.This is for the Marathi readers.This article is written by a teacher in a village whose son is also hearing impaired but has benefited from Mrs. hudlikar's therapy. The parents come for advise once in 3 months but have their son leading a normal life, thanks to her speech therapy.so it is possible that the right advise,given to parents,followed religiously by them can have kids talking even if it is done as less as once in 3 months!
Here is the link too followed by the article, in case someone is not able to get the link.
http://www.esakal.com/esakal/20100523/5656995412009560915.htm


कर्ण बधिरत्वाला त्यांनी जिंकले... त्याचाच हा कानमंत्र
जयप्रदा व योगेशकुमार भांगे, शेटफळ,(ता. मोहोळ, जि. सोलापूर)
Sunday, May 23, 2010 AT 12:00 AM (IST)


प्रसून हा दीडेक वर्षापर्यंत अगदी "नॉर्मल' बालकासारखा होता...मात्र नंतर एकटेपणी अंधारात मोठ्यानं रडणं, नजरेआडून मारलेल्या हाकेला प्रतिसाद न देणं, या वयात होणारी "बाबा', "आई', "दादा', अशी बडबड न होणं, अशी लक्षणं आढळून आली व ते हबकून गेले. आपला मुलगा कर्णबधिर असल्याचे तपासणीअंती त्यांच्या लक्षात आले...मग सुरू झाला अखंड संघर्ष...या संघर्षावर त्यांनी कशी मात केली? 
एकुलता एक, कर्णबधिर अन्‌ त्यातही भंडावून सोडणारी बडबड...या तिन्ही बाबी एकत्र येणं तसं दुरापास्तच. कारण, अपंग अपत्याला एखादा सोबती म्हणून आणखी अपत्य होऊ देण्याची मानसिकता. तसेच कर्णबधिरपणाचे पर्यवसान मूकबधिरपणात होणं हे वास्तव. तरीही या अपंगत्वावर मात करून बोलणारा मुलगा... हे सारं आम्ही आनंदानं अनुभवतोय...
प्रसूनचा जन्म 2000 सालचा. तो चार वर्षांचा होईपर्यंत दुसऱ्या अपत्याचा विचार न करण्याचं आमचं ठरलेलं होतं. पहिलं वर्ष-दीड वर्ष आनंदात गेलं; पण आयुष्यात पुढं वेगळंच वाढून ठेवलं होतं. दुडदुडणारी प्रसूनची पावलं हाक मारली तरी थांबत नसत...एकटेपणी अंधारात मोठ्यानं रडणं, नजरेआडून मारलेल्या हाकेला प्रतिसाद न देणं,
या वयात होणारी "बाबा', "आई', "दादा', अशी बडबड न होणे या लक्षणांमुळे छातीत धस्स झालं. सोलापूरच्या डॉ. विद्याधर बोराडे यांनी "बेरा' टेस्टसाठी पुण्याला पाठवलं. आमची भीती खरी निघाली. प्रसून 90 टक्के कर्णबधिर होता! म्हणजेच तो मुका बनणार होता. त्याची अभिव्यक्ती, शिक्षण, समाजातलं वावरणं...या विचारांनी आम्ही कोलमडलो.

उपचारांसाठी पुण्यात
आम्ही ग्रामीण भागातले. अंधश्रद्धा, देवभोळेपणा, अज्ञान, व्रत-वैकल्ये, पाप-पुण्य यांना प्रमाण मानणारी इथली मानसिकता. अनेक जण अनेक प्रकारचे उपाय सुचवीत होते...पण प्रसून बोलू शकेल, असं कुणीच ठामपणे सांगत नव्हतं. काही ईएनटी तज्ज्ञ तर "बोलेल चार-पाच वर्षांनी आपोआप,' असं सांगून मोकळे होत होते. आम्ही मात्र सैरभैर झालेलो होतो. हा संघर्ष कुठपर्यंत चालणार समजत नव्हतं. दिशा नव्हती. प्रसिद्ध ऑडिऑलॉजिस्ट अरुण सांगेकर यांनी पुण्यात प्रभात रस्त्यावर राहणाऱ्या अलका हुदलीकर यांचा पत्ता दिला. अलकाताईंना आम्ही देव मानतो. त्यांनी आम्हाला सावरलं. तुमचा मुलगा एकटाच नव्हे, तर दर हजारी दहा जण कर्णबधिर असतात, हे सांगितलं. रडत बसण्यापेक्षा प्रयत्न केलात तर हे मूल नक्की बोलेल, याची हमी दिली. त्यांच्याकडील मुले व पालकांच्या भेटी घालून दिल्या. थोडाफार आशेचा किरण दिसू लागला; पण संघर्ष कायम होता.
चुकून दुसऱ्याच बसमध्ये!

पुणं आम्हाला नवीन होतं. नातेवाईक नाहीत की मुक्कामाला हक्काचं ठिकाण नाही. योगेशचंद्र चौधरी हा प्रसूनचा मामा चिंचवडला मित्रांसोबत राहायचा. त्याचे व मित्रांचे सहकार्य व्हायचे. तरीही प्रभात रस्त्यापासून चिंचवडला कसरत करत जावं लागायचं. पुण्यात पहिल्यांदा आठवड्यातून एकदा यायचो.

शेटफळ ते पुणे हा 185 किलोमीटरचा प्रवास असह्य व्हायचा. कधीकधी गर्दीमध्ये उभं राहून जावं लागायचं. एकदा भिगवणला बसमधून उतरल्यावर आमच्या नजरचुकीने प्रसून दुसऱ्याच बसमध्ये चढला. आमची शोधाशोध सुरू झाली. काळजाचं पाणी झालं. प्रसून ज्या बसमध्ये चढला होता, ती बस स्टॅंडमधून बाहेर निघाली होती. त्याच्या रडण्यानं व प्रवाशांच्या लक्षात आल्यानं त्याला खाली उतरवण्यात आलं. पुन्हा असं झालं तर हा बोलणार कसा, पत्ता सांगणार कसा, ही कल्पनाच अस्वस्थ करणारी होती. म्हणून प्रवासामध्ये पत्ता व फोन नंबर लिहिलेली चिठ्ठी त्याच्या खिशात ठेवू लागलो. त्रास कितीही होऊ देत, प्रसून बोलला पाहिजे, हा एकच ध्यास होता.

अलकाताईंचा दिलासा
अलकाताईंनी स्पीच थेरपीचे धडे दिले. श्रवणयंत्रांबाबत मार्गदर्शन केलं. त्यांचा व्यासंग, त्या विषयावरील प्रभुत्व, मुलांविषयीची तळमळ हे आम्हाला भावलं. त्यांच्या कडक शिस्तीनं आम्हाला घडवलं. वेळ पाळणं, स्पष्ट उच्चार, "स्पीच थेरपी' मधील बारकावे यात काही चुका झाल्या तर अलकाताई रागवायच्या. रडायला यायचं. कधी प्रसूनचा प्रतिसाद पाहून शाबासकी द्यायच्या. मग प्रेरणा मिळायची. अधूनमधून प्रवास व खाण्या-पिण्याची दगदग सहन व्हायची नाही. तिघातला एक जण तरी हमखास आजारी पडायचा. मग पुण्याची फेरी आम्ही टाळायला बघायचो. ...पण प्रसून बोललाच नाही तर त्याच्यात आणि इतर जनावरांत फरक काय? ही भावनाच गप्प बसू द्यायची नाही. मग तसंच पुणं गाठायचो. अलकाताईंचा प्रभाव व इतर मुलं पाहिली की, आमची डाउन झालेली बॅटरी "चार्ज' व्हायची. पुन्हा उमेद यायची.

अखेर यश आले
तब्बल दहा-अकरा महिन्यांनंतर प्रयत्नांना यश आलं. आवाजाला, सूचनांना प्रसूनचा प्रतिसाद वाढला होता. एके दिवशी खेळताना पडला व "आई' असा शब्द त्याच्या तोंडून बाहेर पडला. तेव्हा आमच्या डोळ्यांतून टचकन्‌ आनंदाश्रू आले. पुन्हा नवी उमेद आली. शब्द, वाक्‍य, उच्चारता येणारी अक्षरं, एखादा प्रसंग नीटपणे पाहणं, त्या प्रसंगाचं वर्णन कसं करायचं, हे प्रथम ऐकायला शिकणं, मगच बोलणं...हे सारं मनापासून सुरू झालं. दोडके, बटाटे, धुणे, चिरणे, मसाले, फोडणी, भांड्यांची नावं हे सारं समजावताना एक भाजी करायला तास-तास लागे. पण प्रसूनला समजणं, त्यानं ऐकणं, व बोलणं, याच्या पलीकडे आम्हाला कुठलीच गोष्ट महत्त्वाची वाटत नव्हती. अलकाताईंनी आम्हाला आणखी खूप पुढं नेलं. आज प्रसून जिल्हा परिषदेच्या नॉर्मल मुलांच्या शाळेत इयत्ता पाचवीत आहे. अभ्यासातील प्रगती तर उल्लेखनीय आहेच; पण मित्रांत व समाजात त्याचा संवाद दिवसेंदिवस वाढला आहे. शाळेत मित्रांना-शिक्षकांना व घरी आम्हाला प्रश्‍न विचारून भंडावून सोडतो. एखाद्याचं बोललेलं नीटपणे समजलं नाही तर "स्पष्ट उच्चारात बोला ना. मला नीटपणे ऐकू येत नाही म्हणून मशिन दिसत नाही का ? मला नीट कळलं नाही तर मी तुमच्याशी संवाद कसा साधणार ?' असा दम भरायलाही तो कमी करीत नाही ! सारे श्रम, पैसा योग्य दिशेनं सार्थकी लागल्याचं समाधान आम्हाला मिळालं.

व्यापक पातळीवर जा
एवढ्यावरच आम्ही थांबलो नाही. आमच्यासारखे अनेक पालक हतबल आहेत. सैरभैर आहेत. महागडी श्रवणयंत्रे, गरज नसताना "कॉक्‍लिअर इन्प्लांट'सारख्या लाखो रुपये खर्चाच्या शस्त्रक्रिया, चुकीचे समुपदेशन, जाहिरातबाजी यांद्वारे काही व्यावसायिकांकडून हे अगतिक अनेकदा पालक लुबाडले जाताना आढळतात. एवढे करूनही "स्पीच थेरपी'ची चुकीची पद्धत असल्यास पदरी निराशा येत आहे. मुलाच्या नशिबी मुकेपणा येत आहे. केवळ चार-पाच हजारांची श्रवणयंत्रे व योग्य "स्पीच थेरपी'द्वारे कर्णबधिर बालके बोलू शकतात, हे कुणी या पालकांना समजूनच देत नाही. योग्य "स्पीच थेरपी'ऐवजी कमिशन जास्त मिळणारी महागडी श्रवणयंत्रे माथी मारण्याचे काम काही व्यावसायिक करीत आहेत. खर्च जास्त येतो, या गैरसमजापोटी काही पालक या प्रक्रियेकडे फिरकतही नाहीत. मुलांना मूकबधिर शाळेत दाखल करून मोकळे होतात. कर्णबधिर मुलांच्या बाबतीत समाजात असे भयंकर चित्र निर्माण झालेले आहे. हे आम्ही जवळून अनुभवतोय.

पैसा, वेळ आणि उमेद खर्चून मूल दहा-बारा वर्षांचं झाल्यावर अनेक पालक आमच्याकडे येतात. आजवर दिशाभूल झाली असल्याचं त्यांच्या लक्षात आल्यावर अक्षरशः रडतात. खरं तर आता फार काही उपयोग होणार नसतो. कारण माणसाचं भाषा शिकण्याचं वय पहिल्या पाच-सहा वर्षांचंच असतं. आम्हालाही वाईट वाटतं. हे कुठंतरी थांबायला हवं. अमेरिकेसारख्या प्रगत देशात महिनाभरातच बाळाची "बेरा' टेस्ट करतात. बालक कर्णबधिर असल्यास आई-वडिलांना स्पीच थेरपी शिकविली जाते. म्हणून त्यांच्याकडे मुकेपणाची उदाहरणे दुर्मिळ आहेत. आपल्याकडेही अशा मुलांसाठी व्यापक पातळीवर काहीतरी करा, असं अलकाताईंचं सततचं सांगणं असतं.

आता इतरांनाही मार्गदर्शन
साऱ्या परिस्थितीचा विचार करून आम्ही "विजयराज डोंगरे यूथ फाउंडेशन'अंतर्गत "व्हाइस ऑफ द व्हाइसलेस'ची स्थापना केली आहे. कर्णबधिर मुलांचा शोध घेणे व त्यांना बोलायला शिकविणे हा आमचा मुख्य उद्देश आहे. समाजातून पुढे आलेल्या दातृत्वातून ही संस्था आकार घेणार आहे. या निधीतून ग्रामीण गरजू मुलांची तपासणी करणे, श्रवणयंत्रे पुरवणे, स्पीच थेरपीबाबत तज्ज्ञांद्वारे मार्गदर्शन करणे, कर्णबधिरांसाठीच्या सरकारी योजनांची माहिती पालकांपर्यत पोचवणे, पालकांचे मनोधैर्य उंचावणारी व्याख्याने आयोजित करणे असे उपक्रम सुरू करता येतील. गेले वर्षभर काही मुले येत आहेत. ती भाषा समजून बोलू लागली आहेत. गरजूंना मदत करण्याची आमची इच्छा आहे...कारण ही समस्या केवळ त्यांच्याच घरातील नव्हे, तर आमच्याही घरातील आहे.

Thank you Alaka Ma'am

Just came across an old post, posting it.
      Ritik, Aditya and Prisha were together for over 5 years with Mrs. Hudlikar.Last class we attended.
       A heartwarming dinner that she kept for us.Will always cherish specially the curd rice she made.
                 Alaka Ma'am, I love you.You changed my life in more than one ways.Thank you!
                                        Don't ever leave my hand.Be my guiding light forever!!
        Today I want to post a very special post for my Teacher Alaka Hudlikar.Yesterday I decided to finally look at the pictures we clicked at her place when she called me home for a special send off dinner.Till now I was avoiding looking at it as I did not want to feel that- yes it was a farewell dinner.I uploaded the pictures and went through the small video my son took and suddenly felt close to her again.I am glad it is on record, that she would visit me.I then decided to revisit the evening I spent with the person who has changed my life forever and made me what I am.
       There is a special bond that we share.It has to be very celestial, if I may call it, as the 1st year I was with her was so tough and I somewhere had such negative feelings due to her tough ways.As the years rolled by things just seemed to start changing.My feelings for her turned VERY fiercely defensive and protective.If somebody even mentioned a bit of negative feedback for her I was standing there fighting her case.She was right and she has got all the kids talking , leading normal lives for the last 40+ years.Her ways are different but the she LOVES each of her mothers and their kids equally and eventually we becomes like her daughters.I always felt so strongly that I would do anything that she said.It was correct.I felt somewhere, she needed to be all over ,so more people can benefit from her work and her work needs to be documented.Thanks to her we were there in the magazine and in many newspapers and were known in the deaf circuit in Pune.So slowly started blogging and then upgraded to you tube , to spread her work.She gave me a lot of her time, lectures and her confidence that passed on to have a good response.Thanks to her , today I have over 150 posts and 160 videos with more to come.I have the confidence to speak about this topic and have a better understanding of child psychology.If I am able to counsel a mother not only on deafness but even for normal behavior, its thanks to her.Thank you Ma'am for being a part of my life.
        She called us for a parting dinner.And I feel so blessed that she cooked an entire meal for us.I was so touched when she came down wearing the saree I got for her.We chatted and the there was a lovely 2 course menu.There was a special salad made by Ram Bhaiya, her son, and the a lovely paneer curry, warmed garlic bread and potato cutlets.I just loved them.Then came this very special dish-CURD RICE topped with crunchies.What was special?Well when she told me that though the dish did not go with the previous menu, she made it as it was made with the purpose that I should come back safely.I had that tug in my heart and my eyes too moistened up at her very special gesture.Ice cream followed and the best part was we chatted around the table for a long long time. I did not want the evening to end as we discussed about when she visits me, how we have to be in touch and various other things which made the whole evening very special.A sudden call from home by my mother in law ended the evening. My father in law was unwell.We had to just rush and I regret that we could not take more pictures together or could not say goodbyes well.I am glad though as being an emotional person, probably I would have found it too difficult to say any parting words.We hugged and cried silently, holding on to each other as if my life depended on that moment.Her love and affection so huge that I felt the power of supreme there.Thank you Ma'am for your love and the special gift you gave me, it will be 1st with me and the Prisha takes it and will be there with us always showing us your presence in our lives forever.Look forward to meeting you soon.

Monday, May 17, 2010

Status Update

Yes I have been away for a really long time from something I really love doing-blogging and uploading movies on the subject of hearing impairment.These 3 months nearly flew by as I am in th process of shifting and having changes in my life which did take a toll on my mental frame too.I have not been able to visit blogs and need to catch up on my favorite blogs.
My husband decided it was time for us to shift in with him to Germany.So the whole process started of applying for the change and getting our papers ready(it can be so tedious). Another big job I took was to start learning the language! I saw it as a chance to learn a language as well.I enrolled into private tuitions as the Max Muller was full. As the time was short , I had to really have to study hard and studied like 4-5 hrs a day apart from the tuitions that I attended with a teacher who put in her best to accommodate 24 classes into 12 classes, which meant hard work for me.At the moments where i was pressed by time and the lessons sometimes went over my head specially with the grammar, I would have cold sweat and would wonder why in the world I decided to get into it.Fortunately the hard work paid off and I made my teacher proud with great scores achieved in half the time.So now I am more comfortable in Germany with the language and hope to acquire more hands on.But one thing I learnt from this, how difficult it is to learn a language. i could identify with the deaf kids and could feel that due to lack of mouth muscles, they become lazy and as the years roll by, they find it difficult to pick up the language.As my mouth was not used to moving according to the German lingo, I found it extremely tiring and painful to talk the language. Though my teacher would insist on talking in German, at the smallest opportunity I would actually avoid and speak in English.So is with the deaf, as signs are easier, given a chance the deaf kids prefer to use signs as against spoken as it is less tiring. The process of remembering the words, the order, the grammar the intonation and the nuances of the language can actually be like a burden and the we find easier ways of getting out of it. I really feel learning a new language was a great insight for me to understand how challenging it is for the deaf to speak. There were times that I would be answering a question , trying to figure out the grammar, the order etc, and I would not hear what I was speaking as my total focus was on getting the statement right.In the process i never knew what I said and could not repeat if required. My teacher would keep reminding to listen to what I was saying and I remembered how i used to force Prisha to listen to what she is saying so that she could correct herself.That is how a normal child learns to correct and speak. They are not conscious about speech and as they grow older they listen to what they are saying and correct themselves.THEY LISTEN TO THEIR OWN VOICES!
I am now in Germany after a last minute gaenac surgery too done in India with no time for recupperating. Settling down with a new home to shift in next week, furniture to buy, furnishing the new place, schools to still confirm admissions, new environment, phew, it is a whole new life!Somewhere this is taking a toll on my mental stability as you are having to make too many decisions and too much stress.Prisha's speech too has taken a back seat somewhere as I am dealing with my own mental and physical makeup.I need to pull up my socks and make sure that in the next 2 months I should homeschool my girl and fill her up with all that has gone by and do more more more.Hoping to have a very nice stay in Germany where my kids' education is taken care of and Prisha has more chances of learning more. My biggest challenge of leaving India was leaving my BIGGEST support, motivation and help- my speech therapist Mrs Alaka Hudlikar.We have become very close in these 5 years and she is more of my mother to me. We have promised regular calls and inputs would be there regularly but things are not the same when you do not attend hourly classes twice a week. She has been a life changing experience for me and there is not a day , not a moment when I do not miss her. She will always be my guiding light wherever I am.Thank you Alaka Ma'am for being a part of my life.

Saturday, February 20, 2010

An interesting blog

I came across this post in the blog that I follow. I too agree with him that HA benefit the child and he learns to talk , why implant the child. Of course, each to his own. But I loved the information this blog provides.I added the link for other people too.
http://deafdude1.blogspot.com/2010/02/simulating-mixed-hearing-loss-met-asl.html

music enhances brain activity

I read this in the Times of India newspaper and found it very informative. Music is very important I feel. I do make these little songs for Prisha to remember things and I find that if i give a tune to a certain sentence, she remembers things better. Must read.

Thursday, February 4, 2010

Dance - a teaser

Today Prisha's dance teachers called us over to see her dancing to give us an idea of what she has been learning.I was so excited.Till now she had shown me bits at home. She and I would finish her class and then as we passed Mac Donald's, she would show me all that she learnt on the steps outside Mac D.Today I looked forward to see her dance in the class. I was so happy.
 I waited outside and went around buying things I needed for dinner while she danced.Soon we were all called into her dance room and she was soon in position.The music started and my little dancer started to move her little body. I saw her doing the salsa moves that she learnt and her little frilly skirt moved around her little hips. So cute! I had moist eyes and I kept wiping them away.We all cheered the little dancers and my girl and I hugged each other hard.
I had noticed Prisha looking at the teacher move and was copying her . I thought of talking to her as she was really straining herself. As the music she danced was in Hindi language and she did not know the language, she looked at her and danced.She was put in the corner far from the teacher, which made her really strain herself.When I brought it to her notice, she said that Prisha was dancing well and lip read her and so there was nothing to worry. To this I immediately told her that Prisha was auditorily trained and did not lip read , in fact she interacted in the dark too.I loved the shocked look on her face as they are still under the impression that deaf are always signing or lip reading.I am happy to be part of this changed opinion that deaf are mute too and are not listening.   

Wednesday, January 27, 2010

Musical update

Prisha was asked to be a part of the singing group for our Republic day celebrations in our society.She had been practicing her singing with me and she was doing very well, taking all the corrections. She stood in front of everybody and started to sing with her group. Initially she looked a bit lost but when she looked up at me and I urged her to sing loudly, she gave her best shot. I was very thrilled about it.
Her 1st introduction to the music class was not too great. She went in happily but suddenly when asked to come behind the keyboard, she started to look a bit overwhelmed. A little egging, and she was crying and looked very upset and sat behind me. I was a bit pert up about it but then I knew the best bet would be to use-"sibling rivalry". I asked my son to play along and praised his playing the keyboard so well. Prisha then asked me to buy her a PINK color keyboard if she went to the class. I just got a call from the teacher and he said she has picked up the basic notes very well and now needs to just do it vocally too. I am so happy and really hope she picks it up fast. I was musically inclined as a kid and did stage too and always wanted my kids to do some too and I am keeping my fingers crossed.

Friday, January 22, 2010

A new step

I have been training Prisha to pay attention to difference in tunes, rhythm, etc so that she too can sing.I have always been fond of singing and did a lot of singing on stage too. I always wanted my kids too to be fond of dance and music.My son plays keyboard and Prisha too just ran her fingers.A part of  me  at times felt hurt at a thought that maybe she would never sing. But the singer in me never gave up and would sing along for her. I would exaggerate certain parts of singing to make her notice the difference in the notes, I would pat on her leg while the song would go on to get her the rhythm.Slowly, over now 4 years, she has got that rhythm and does try her singing.She does not always put words always, but at times we just make our own songs and laugh ourselves silly at what they sound like. They are like those typical mom-daughter moments.Her intonation is like a normal child.I asked my son's music sir if Prisha too learn the keyboard, he 1st asked me to wait for a year, but today he said he will take her now itself and he did not mind her coming everyday. I am so excited that she too would learn to play an instrument. we will try our best.i also have put her into Shiamak Daavar classes for performing arts, where she will attend 15 classes of dances. I spoke to her instructor for a feedback after 2 classes. She said that she was very happy with prisha's concentration. She had no problems understanding any instructions and did all the steps along with all the words. I am very happy with this new step in her life and hope she achieves everything she wants to.

Monday, January 18, 2010

Ear molds

2 Years back I got Prisha's molds made and made sure I pressed in the soft dough [ if I may call it that] well into her ear canals as earlier they were not made properly. Now they needed to changed and so I was off to my audiologist to get them made. Impressions were made and Prisha really had things been stuffed into the ears and wailed a lot.I wanted to take a video of it so that I could post it on my you tube account for people to see.But hearing her cries, the mum in me forgot everything. The impressions were taken, bribe was paid [ she bought things she wanted , which she does after all doctors visits] and we waited for the molds to be ready. I was told I would be intimated when they are ready. I waited but no calls. And so I called and they said they were ready but could not inform as they couldn't find the receipt which had the number.Gosh, I was quite bugged, its so typical here.
I went and saw the molds looked different.Earlier, the molds had removable "U" shaped pipes which could be replaced when they got discolored.This time, the mold had a little L shape hard pipe where the long pipe that joins the hearing aids . This hard pipe does not go completely till the end of the mold, but has another illshaped extension till the inside of the mold. When I questioned them, I was rudely told that they were the experts and knew more than me.When I said I prefered the other kind of molds, I was not even entertained and was told I was still a hyper mum.Is it wrong to question something that is wrong. Trust is built on services provided sincerely. I was not allowed to complete my problems, disgusted I walked out. Prisha wore the aids and I was so excited as she was going to wear both aids after one full year. She wore the aids and the 1st reaction was-"mumma, it is so loud". I reduced the volume and she wore the aids for a few hours. The aid made lots of sounds the next few days. Her response was fantastic, she heard better and within 24 hours, the speech was better too. I was happy one one end and the other side, she was complaining of continuous feed back. there was no doubt that the mold in the left ear was not fitting well.I decided to call the audiologist and she was again very rude on the phone.She told me that if it was giving feedback that means she would need to shorten the mold's length and if that did not solve the problem, she would re-programme the aid. I said I did not want to do that.[The last time she spoilt her programme completely and we really suffered] She was again rude and said if I did not know something, I should not question her.I was asked to trust her , but with that rude behavior, past bitter experiences, how could I? I even told her that the old mold did not give any feedback inspite of being  2 years old, but I was not heard out. I was feeling so helpless. I have decided to use the old mold as of now, keep my patience and look for better mold in Germany when I go this summer.I hate to be made to feel like dirt. Is it because i go for therapy to Mrs. Hudlikar and Prisha is speaking well? Or is it that she has read my blog and guessed something from my mail? There is something definitely wrong.I for sure know that she does not like me and nor is she interested in my benefit.There are so many like me who suffer from the mal-practices. I am aware and so am on my guard all the time.Others don't know their rights and are not literate enough to question.I have lost the money i paid for the mold but I am sure I will find solutions after a bit of waiting. 

Saturday, December 26, 2009

lots of interaction

Last 2 weeks have been very full with activities. We had our family from around the world home for that time. Prisha's uncles and aunts and cousins were there and we had lots of action back home. We observed a very interesting aspect of Prisha's growth. Every individual is so different and she interacted with every body at their level. According to her aunt who is into the field of child education, Prisha's emotional quotient is very high.She was dealing with every person defferently and it was all speech dependent. One of her uncles , who has deaf nieces on his paternal side, is a lot into signs. He told me that as a habit he would use signs with Prisha but she always responded to speech in speech and did not pay attention to signs.He was happy that she did not lip read , she responded to everybody from any direction and did not need to be spoken individually. She sang, she acted out the teacher student role so well that everybody was into splits and knew what her teacher must be doing in the class.Sometimes she acts out doctor -patient, teacher student or sometimes it was speech therapy and other times she was the best momma.She kept each person occupied loving them, entertaining them and interacting with them the way a normal child would. Looking at that at times I had moist eyes as everybody was so happy at the way she has turned out. No body pities her and they are all thankful to my speech therapist for her help in Prisha's integration into normal life.It has made my life so easy and simple as she has a spoken language to interact with the world.
I was teaching her our different relations that she was coming across. The funniest was something that every body had had them holding their stomachs.I was teaching her about the various relations that she shares with all and how my relations are different with those very people.As her dad is my husband , I told her that my husband was coming home and I would hug him. She was insisting that it was her husband. After a long explanation she got this straight. When we had our living room full, she started off her dramas. She said aloud, " mummy, I love your husband, aunt, i love your husband , granny I love your husband". For a moment everybody was silent and then there was a huge laughing session after that.I love the way she deals with situations without me interfering and she comes to terms with them and them uses them to entertain us.This time I realized the importance of a spoken language over signs. I am glad to have such a normal life where each one of us enjoying the little child in our home.We are all thankful for AVT and the teacher who has translated it to us so that we can understand it in layman's terms.