Wednesday, June 17, 2009

Keeping hearing aids on

We have dealt with lots of moms who complained about how to keep those huge hearing aids on those tiny ears.First we need to know , why do the kids take off the aids.Once we know this the rest is easy.
I had issues with Prisha about the hearing aids being thrown off.She had just started putting them when she was 10 months old.She threw one of them off into the DUSTBIN within that month! They are expensive lil things, the value they don't understand till we make them realise it. Here came Mrs. Alaka Hudlikar to the rescue.I too had actually tried tying the scarves on her but she would find a way to wriggle out of them.
The kids take them off as they do not enjoy or like wearing them.For them the world was a nice silent place with which they made their adjustments.Now with these, there is so much sound which at times scares them and sometimes bothers them. This happens till they realise and understand the meaning of those sounds- sound perception.To top it the moulds too can be quite suffocating in the ears.It is very important that the child should hear sounds [ could be anything from music to mom's voice which makes meaning to him etc.] that excite him and make him want to hear them.Like initialy with Prisha , I used to really talk a lot of things, show her around, sing and do things naturally which made her want to pay attention to what I was saying, diverting her mind from those stuffy , noisey things.So for her they became a mode of communication with the exciting world of sounds.She wanted to be a part of it and give her own voiceing.But there were times , she just would not have them in her ears.She realised I had great importance for those Hearing aids. So when I was ignoring her or giving her a dressing down for some tantrum, the hands would definately go to the aids, threating me.At that moment, I had to be very firm and strict.I would give her a warning and show her my eyes and would definately give it to her in a firm voice. At times she listened but if the tantrum went further, there are times I told her that since she does not want it, she needn't bother, I would take it out and throw it away, then she cannot hear. Sounds nasty but it worked.Then once this warning too was ignored and she was pulling it out, I quickly took them out and pretended to throw them out of the window into the street.She was horrified and started to cry.I told her its gone and since she does not like them she can stay without them.I walked out of the room, with my heart bleeding at her crying. But I knew it was all for her good.She came in later and since she had little vocabulary , pointed to her ears and wanted them on.With a bit of signing [as she was just a year old- I NEVER use signs otherwise] I was able to tell her next time she should not do it. We put on the aids, and then I talked to her in simple small sentences telling her not to throw otherwise mumma would throw it.That was the last of this behavior.
This is Ma'am's philosophy.She does not believe in being very available to the child.Most good medicines that are good for us are bitter.She feels if the child threatens the mother, he is holding her to ransom as he knows the mother would eventually melt.Let him realise the value of the aids and once he starts to enjoy the sounds around him, he will never ever take off the aids.Prisha has been off the left HA for the last 6 months. Her ear boils have gone from her ear[ thanks to homeopathic medicines given by our Dr. Sunil Anand].But since the skin is just healing I don't want to put the aid.She keeps telling me she wants the other aid. If she did not like it she would never want it.It has worked for me and for hundreds of mothers who have come to Mrs. Hudlikar in the last 40 years.So I am sure it would work for everyone.

7 comments:

  1. I will have to try something along these lines. Sometimes I think he hears a little too well without his aids (that's a good thing, but he can "get by" without them and tries to)! One thing he does not like is when his brother comes to get the aids, because he gets jealous that Matthew has them. I might be able to use that to my advantage!

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  2. How does he hear better without them?I think you should get it checked.In our class we have a 13 yr old who has mild loss but eventually had to use the aids at 11 as it became difficult for her understand things in the long term.It will affect his long term speech clarity.I would still say that you MUST enforce him to wear them 1st thing in the morning and to be removed the last thing before sleeping.Once he realises the importance, he would enjoy wearing them.Does Mattew also wear aids, if so then you should praise him for his clarity of speech, wearing aids without fuss. Jealousy and moms praises are something the kids will do anything for.You must show your disapproval the moment he is without aid and show you cannot understand what he talks.Correct his speech more often and the moment he speaks correctly, praise him. tell him that since he wears aids all the time his speech is getting better.your approval and disapproval would pay a key factor.Ask Matthew for help[ play acting] My son does it very well and Prisha is soon doing things we want her to do.

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  3. Matt does not wear hearing aids- he has normal hearing (but has a speech delay that we've been working with). Yesterday we were playing with some toys, and when Nolan took the aids out, I started to put the toys away. No aids, no playing with toys. He is still very bad with taking them out- we have a hearing test on Tuesday and I want the audiologist to verify that they're still set correctly. Also, the one is broken so perhaps that is bothering him? I can't wait until the day comes that he leaves them in place without any hassles!

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  4. I think he does not wear them as maybe he does hear well with them and he does not enjoy it.Try testing out with the 6 ling test. If he hears it well then he would pronounce those even without looking at your face just by hearing.then it is all right. Also with Prisha I keep asking her to just "echo out" fun things.We just blabber things and she has to say them exactly the same and we laugh over it. It is fun and really good therapy.I satrted it around 2 years of age and we would say silly small things, funny sounds and she would reciprocate.Do it impromptly at odd times.Once he enjoys it ,and knows that all this is not part of the therapy, he would not like to miss those times of fun and would like to hear and wear aids.By taking away the toys, he just maybe feel threatened.Let him get addicted to sounds.Echo stage is the best stage for language development as the kid does not feel he is doing therapy and just blabbers without thinking and it helps in the long run. I still do it with prishaa and Nolan is just right to start.I will put a demo on youtube for you I think how I do it.

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  5. We are trying a lot of positive reinforcement, as we don't want him to view his aids as a negative thing. Today we did get 4 solid hours of aid wearing, then he pulled them out 2x, then another 2 hours before nap! So that is pretty good for him. We have a hearing test tomorrow, so it will be good to verify that his hearing is stable and that his aids are set appropriately. The only Ling sound he has trouble with is the "OOOO" sound (even when aided). He thinks it is "mmm" or "eee" or "aaahhh." His hearing is at around 60dB in that region, so I wonder if he has some distortion there. The "ih" sound (as in fish) is also distorted- usually comes out as "uh." We keep working on it!

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  6. I spoke to Alaka ma'am and she said that one must put the aids even before the child wakes up. Let him have the aids on then and start to wake him up by talking to him. Hearing your pleasent voice waking him up would be exciting to him.The last thing before sleep is aids again.All day long our kids have them on and are exposed to language . the moment he is without aids, he is without sound and looses many oppertunities to hear and develop langauge.Once he enjoys listening he WILL never want to remove them.More exposure to sounds means more oppertunities to hear correct speech and get corrected.Do get the aids checked.Also emphasize the correct word.He will come around.All our kids wear aids for around 14 hours in a day.Only aidless while sleeping at night, They are aided even during the afternoon nap too!So all the best

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  7. I will definitely try putting them on before he wakes up. That's a pretty good idea. He is still refusing to wear them, but we did find that he lost some hearing at 500-1000Hz. So he is a little under-amplified at the moment. We will have the hearing aids reprogrammed on the 14th- these kids with fluctuating/progressive hearing losses are difficult because the hearing level is always changing! His "good" ear has gone from 50dB to 60dB in two frequencies(not that big of a change, but still a change).

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